Saturday, May 15, 2010
5 months
Nearly five months out from the operation and I am almost onto fortnightly visits to the hospital. The doctors and I are trying to get the balance of my drugs right, To the point that my body can fight the BK virus I have in low levels in my blood. Meanwhile the head of transplant has a new theory about why my creatnin levels have been up and down. He thinks I may be super sensitive to one of the drugs (cyclosporin). Common sense supports this theory as I have had problems with both red and white blood cells getting low. I am not a candidate for the other drug that Can be used (commonly called tac) as it has a worse record with BK virus. There is another group of drugs that some people switch to after about 6 months, but this group of drugs is containdicated in recipients with .5gram or more protine in urea, (ie they may cause catastrophic rejection). I have about 2grams of protine in my urin so that group of drugs is out also. It seems I am stuck with the current cocktail.
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Yes these DRUGS,we cannot live with them and we cannot live with out them. I saw the specialist last week, and was told that the TAC is causing the soles of my feet to tingle. It is nerve damage, not much I can do about until they bring the leval of tac done. That wont happen for some time.
ReplyDeleteYou'll be happy to have the number of hospital visits lessen; not so good to know about the drug problems. Hope to see you later in the year when we hope to visit to Peter and family.
ReplyDeleteAlan I discussed changing to TAC with my doctors but it is contraindicated for the BK virus.With Cyclosporin I have had heat in fingers and toes from the start and also in the lips and tongue at first. I am currently only on 70mg twice daily and I still have the symptoms.
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