Thursday, November 26, 2009

dialysis

Unfortunately it seems my kidneys aren't quite going to make it to the 17th december without some assistance. Therefore I will have at least one two hour session of dialysis after the line is put in on Friday 4th december. This will happen on the same day as the first plasma-exchange. I am advised that I won't feel any different after the plasma- exchange.

Friday, November 20, 2009

Lead up timeline

Things are warming up with the preparation for the transplant. I now have some details and dates that apply.
Dec 4th admitted to St Vincents' private for permacath insertion. Followed by first Plasma-exchange later in the day. From this point on I will be immune compromised once again. If you plan to visit please do not do so if you have a cold. If I encounter you in the street and you are ill please let me know. I will be carrying a mask and can put it on.

Dec 7th, 9th, 11th,14th More plasma-exchange. It takes about half a day, I do not have times yet and I don't know if I will feel better or worse after the procedure yet.

9th december also final tissue typing for Mum and I.

16th December admit to Austin Hospital, also Mum .

17th Transplant surgery confirmed.

19th dec resume plasma-exchange in the Austin.

24th December anticipated discharge

To follow daily review at St Vincent's with plasma- exchange 3 times/week.
Plan to continue p-exchange for 2 weeks, then review.

Tuesday, November 10, 2009

Coordinators

Some wonderful people have taken on the jobs of coordinating the various areas in which we have asked for help;

1) Meals coordiator is Dieni. Dieni prefers to be contacted by phone 0425 743 219

2) Child minding coordinator is Vanessa. Vanessa prefers to be contacted by phone 0400 893 358

3) Transport coordinator is Glenys. Glenys prefers to be contacted by text message 0400 443 639 We will need to use this more than we planned due to Stuart breaking his wrist and being unable to drive for an indeterminate period. When Glenys is on holiday Alison has kindly offered to step in as transport coordinator. Alison can be contacted by phone on her mobile 0404 065 912 or at home 9326 3043.

4) Visit coordinator is Stuart. Stuart prefers to be contacted by phone 0418 418 423